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Proposals for Congenital Heart Disease Services

In July 2016, NHS England published a set of proposals regarding the future commissioning of congenital heart disease (CHD) services for children and adults. They describe the actions which they propose to take in order to ensure a consistent standard of care for CHD patients across the country, for now and for the future.

They propose to do this by implementing national service standards at every hospital that provides CHD services. The effect of their proposals, if implemented, will be that some hospitals will carry out more CHD surgery and catheter procedures, while others, which do not meet the relevant standards, will stop doing this work.

NHS England are welcoming your views on the consultation, which closes on 5th June 2017

To access the consultation, please visit https://www.engage.england.nhs.uk/consultation/chd/consultation/intro/

The aim of this public consultation is to provide you with

, and the potential impact they may have, if implemented, on the delivery of services, and to seek your views about our plans.

During the consultation period NHS England will be attending a range of events (

). They will also be hosting events including three large-scale face to face events and a series of webinars (online meetings) – please register via the links below.

Face-to-face events

  • 28 February, 1.30pm– 4pm: Norfolk & Norwich Patient, Public and Staff Event, Norfolk and Norwich University Hospital
  • 2 March 10am: North East Health Scrutiny Committee, Hartlepool Borough Council
  • 3 March, 10.30am – 12.30pm: Oxford Patient, Public and Staff Event, John Radcliffe Hospital
  • 6 March, 10am: Derbyshire Health Scrutiny Committee, Matlock County Council
  • 7 March, 6pm – 8pm: London Question Time
  • 9 March, 2pm – 4pm: Leicester Staff Briefing
  • 9 March, 6pm – 8pm: Leicester  Question Time
  • 11 March, 10am – 12pm: Manchester Patient, Public and Staff event, Manchester Art Gallery
  • 14 March, 10.15am: Nottingham/Nottinghamshire OSC, Nottinghamshire County Council
  • 14 March, 2pm: Joint Leicester, Leicestershire and Rutland OSC, Leicester City Council
  • 15 March, 10am: Lincolnshire OSC, Lincolnshire County Council
  • 15 March, 1.30pm – 4pm: Cardiff Patient, Public and Staff event, University Hospital Wales
  • 16 March, 1.30pm – 4pm: Birmingham Patient, Public and Staff Event, Birmingham Children’s Hospital
  • 18 March: Little Hearts Matter Patient and Families Event, Birmingham
  • 21 March, 5pm – 7pm: Leeds Patient, Public and Staff event, Leeds General Infirmary
  • 22 March, 1.30pm – 4pm: Barts Patient, Public and Staff event, Barts Hospital
  • 22 March, 6.30pm: Kensington & Chelseas OSC, Kensington and Chelsea Borough Council
  • 23 March, 4pm – 7pm: Alder Hey Patient, Public and Staff event, Institute in the Park – Alder Hey
  • 25 March, 10am – 12pm: Papworth Patient Event, Papworth Hospital
  • 27 March, 2.30pm – 4.30pm: Great Ormond Street Patient, Public and Staff Event, Great Ormond Street Hospital
  • 28 March, 2pm: Rutland Health and Wellbeing Board, Rutland County Council
  • 28 March, 5pm – 7pm: Evelina/Guys Patient, Public and Staff event, Evelina Hospital
  • 31 March, 3pm – 6pm: Southampton Patient, Public and Staff event, Southampton General
  • 1 April, TIME BC Leicester, Patient and Families event, venue TBC
  • 6 May, TIME TBC: Brompton Patient and Families event, Royal Brompton Hospital
  • 8 May, 4pm – 6pm: Lincolnshire Patient, Public and Staff event, Lincoln County Hospital
  • 8 May, 3.30om – 6pm: Blackpool Patient, Public and Staff event, Blackpool Victoria Hospital
  • 9 May, 5pm – 7pm: Wrexham patient event, venue TBC
  • 11 May, 6.30pm – 8.30pm: Newcastle Patient, Public and Staff event, venue TBC
  • 15 May, 2pm – 5pm: Bristol Patient, Public and Staff event, Bristol Royal Infirmary

To register for the above events please contact the hospital or email england.congenitalheart@nhs.net for more details.

Translated consultation document

Young People CHD

So that children and young people are able to understand the proposals and share their thoughts we have created the Young People CHD website with an animation and a secure portal that can be used by them to tell us how they feel.